Tuesday, 24 March 2015

#HugsForNoah paralysed Noah stands ! I Will and I Am !



Where theres a will there's away ! Back in early December last year Noah got fitted for his body brace we call these Noah's dancing legs, just under an hour to have this cast done, Noah didn't bother bless him 

Daddy held Noah up in the air so the cast at the back could have a lovely curve 

You tell with his bright red cheeks bless him, Noah had, had enough ! Now we waited for the phone call for the next step to have the brace fitted, we still wouldn't be able to take them home as the braces still needed to be lined with shammy leather and the straps sewn on. 

Noah has come such a long way ! Incredible to think that Noah has just 2% brain, paralysed from the chest ..... He's SO determined Noah's now asking to RUN !!!!!! I'm not thinking oh no you can't do that, I'm thinking how do we help you Noah to run ! In the news lately a bionic arm made from a 3D printer surely an outa bionic brace could be made ? 

We take so much for granted to stand or take a step, get up and walk 


Friday 13th Febuary 2015 we saw our amazing son stand for the first time ever what an emotional day the most incredible thing I've ever seen ! We wanted to take them home but couldn't as this was our fitting day ........... 



A few weeks later a second fitting and we got to take Noah's dancing legs home ! 



A very proud moment for us as parents and a huge thank you to Team Brantly & his amazing parents, if it wasn't for you guys we wouldn't of known about these braces as we weren't offered them on the NHS but after not shutting up for two years finally Noah got his legs, we feel very lucky to share this with you and hope it will inspire others never to give up, Noah has loved being on his feet, Noah's balance is awesome ! So thank you Team Brantly ! We send our love across the pond xxxxx 


Noah standing on his own two feet 

Here's the YouTube link of Noah taking his very first steps http://youtu.be/cqYglstRH8w



Noah turned round to give daddy a big kiss bless him ! 

For daily updates on Noah I do post on my Facebook page & Noah's www.facebook.com/TheShellybobbins & www.facebook.com/HugsForNoah 

Come and say hello if your on Instagram, Twitter, YouTube, audioboom 

We are also PR friendly hugsfornoah@yahoo.co.uk www.hugsfornoah.co.uk 

Love Shellybobbins®

Monday, 2 March 2015

Feeding the birdies #HugsForNoah


Today I asked Noah would you like "to stand" then he said "Shouted YES" so I've never been on my own putting on his body brace before & it is a 2 adult process !!! 

As you can see mummy managed but being in the front room telling Noah the birds need there bread I realised I then had to carry him, get the bread for the birds, find the door keys, carry a chair so I can sit beside Noah, etc etc lol, 

will plan better tomorrow, then Noah started to break up the bread and mix it in his kitchen sink, eat it and mix it with a spoon as you do, "mummy open door birdies bread" Noah said 

so he threw it out side but then also threw the kitchen sink and pans lol !!!! Followed by him saying "OH NO LOOK ........... PAN OUTSIDE" lol 


I couldn't stop laughing then Noah tries to get his head into where the sink goes and actually gets onto his tiptoes !!!!!! 




20mins he lasted bless him then lay shattered with his warm milk, blanket & ted bear ! #HugsForNoah 


Tomorrow is another amazing day ! want to see Noah's valentines christening ? please visit www.hugsfornoah.co.uk #HugsForNoah 

Monday, 23 February 2015

#HugsForNoah 3rd birthday........ Virtual invite & free download party pack


Noah's 3rd Birthday on the 6th of March and like last year we are having a free birthday pack download http://www.hugsfornoah.co.uk/noah-s-3rd-birthday-virtual-party Noah's party pack was printed off and actually went global last year so we are wanting to do the same again ! 

We Need Your Help ! We can't do this without your support, raising awareness I do everyday my mission is to spread the awareness of Noah's condition he has just 2% brain & paralysed from the chest, I know to take folic acid and did BUT what I didn't know was that you must take it 3 months before getting pregnant .......... Noah has a condition called Spina Bifida it sets in from the 14th day of conception and you don't even know your pregnant ! Around 1000 babies are born every year with this condition and around 200 actually make it, parents are given the choice to terminate upto 33 weeks in some cases, we where given this option and declined it 5 times ! a none resuscitation order was put on our beautiful baby son which we named Noah ...... We planed the funeral so we could all spend the time with Noah after the birth knowing we'd all be together with him.

Noah let out a HUGE cry his determination everyday to be here and do things is an amazing sight to see ! 







Please come and join in with Noah's 3rd birthday take a selfie and let us know where your from or what country 

Thank you 
Love Shellybobbins®


Wednesday, 11 February 2015

Guest blog meet the lovely #SBS winner @MarshmellowUK #HugsForNoah


Look what the postman delivered this morning ! Thank you Gavin & Jackie we really couldn't wait to open these, Noah straightaway picked up the chocolate marshmellows "mummy open open" these had a very light dusting of coco on them & they're absolutely delicious ! 


Fresh smell of Marshmellow as we opened all these lovely parcels. Noah held the coconut piece & smelt it, this is the first time Noah's had Marshmellow, it's really soft & squidgy, like little pieces of fluffy clouds, it's very light in your mouth with bursts of flavour too!




We both loved the Belgium chocolate ! Can you tell Noah did too ! 


Chocolate all over his face bless & then on to the coconut flavour ! Ooooooh this was my favourite, if you love coconut you need to try this this one, it's mouth watering !!! Can't wait for hubby to come home and try blackberry flavour & fresh raspberry too along with nougat.


As I looked away Noah helped himself to another one ! 

Steph Noah's sister really loved the salted caramel "Just like Fudge & really delicious" 


Gavin & Jackie have had the pleasure of meeting Theo Paphitis & are official #SBS winners 






Twitter:   www.twitter.com/MarshmellowsUK 






Noah with Theo 

We will be updating this blog post with hubby's comments on the nougat & blackberry Marshmellow & fresh raspberry flavours soon ! 

Love Shellybobbins® & Noah ©#HugsForNoah™

Monday, 9 February 2015

#HugsForNoah Valentines Christening virtual invite



Good morning lovelies with only a few days to go before Noah's Valentines Christening Day we are getting SO excited, so many family and friends are coming to spend the day with us...... But don't feel left out as we want you to come and join in online throughout the day we have set up an events page on Facebook https://www.facebook.com/events/861115897264644/?ref=2&ref_dashboard_filter=upcoming

If you've never heard of Noah's story he has just 2% brain the rest of his head is fluid amazing that Noah can take a breath never mind see & hear, it's also remarkable that he understands you has a chit chat and usese words like marvellous & unbelievable, he knows how to count to 10 knows colours, shapes, animals, sings.  Noah sends emails can use Instagram, twitter too, he's nearly 3 years old, Noah also has a condition called Spina Bifida Noah was born with an open back you could see his spilt spine & nerves this was closed up after 43 hours after he was born, he's paraylsed from the chest & yet can tell us when he needs the potty, Noah has another condition called Lymphoedema his feet are very swollen with his, dispite having these conditions & also having a shunt fitted (head drain) nothing stops him and as parents it's important to us to raise awareness everyday if you would take a minute to look at Noah's website & watch his awareness video share it with your family & friends we'd be very grateful we think Noah is an amazing boy. www.hugsfornoah.co.uk 

We've also set up a page for twitter too http://hugsfornoah.tweetwally.com/iphone 

Every week for the passed month family & friends have been round helping out & hand making decorations for Noah's christening 

This week it was love heart bunting, I was really surprised how easy it was to make ! 

Meet the family Aunt Anne, nana, Noah's sisters Steph & Ally, Aunty Steph, Aunty Annmarie, Lucas, Noah's daddy Rob 

Aunty Annmarie has spent ages cutting out salt dough elephants for bunting 
Don't they look fabulous 


One week it was bracelet making, I thought it would be lovely for Noah to give all the lady guest at his Christening a Valentines gift on the day ! 

These bracelets will be available on Noah's website 

It's been really lovely meeting here ever week & crafting, Its something I'd love to keep up & have knitting, sewing,card making, jewellery making classes, fimo, clay classes too not just a social thing but fabulous to all be crafting & having a good old laugh doing it all too ! 

Please don't forget to join in with Noah's Valentine Christening online and send your messages to Noah xxxxxx 

Lots of Love Shelly xxxxx

#HugsForNoah Valentines Christening




Good morning my Aunt Esther came for tea yesterday & brought my handmade hooded blanket if anyone's a knitter you'll know how long things take to make, this blanket has 200 stitches, a lot of love has gone into making my blanket & I can't believe my Aunt Esther is 100 & she's made this just for me xxxxx thank you Aunt Esther I love you very much ❤️ #HugsForNoah 



Love Shelly xxx 

Saturday, 7 February 2015

#HugsForNoah Piano Fingers

Good morning lovelies how are you and what's your plans for the weekend ? 

We have Aunt Esther, Nana, Grandad & Uncle Raymond coming so just 10 for tea, we are all getting really excited about Noah's Christening next week, we've had some amazing help from family & friends making & using what we have to recycle & make decorations, I have some material bunting that I'm half way through still have to sew it it all up yet. 

Noah's been loving his piano this week, it's a really old not tuned and we've glued some of the keys back on, but the main thing is Noah loves it, we bought it for £20 many years ago & a piano stool for £1 at the auction, I love to see Noah enjoy his music !

We will have a few surprises next Saturday to share with you to ........... Can't say anymore

Lots of love Shelly x